Paul Berns, President and CEO of Allos Therapeutics, accepts an award presented to his company for bringing a new treatment to market for a rare form of cancer known as PTCL

NORD President and CEO Peter L. Saltonstall.

Marilyn Bergman; Estelle Benson, of GBS/CIDP Foundation International; Dr. Garrett Bergman, NORD Medical Advisory Committee; and Patrick Collins, of CSL Behring

Frank Sasinowski, chairman of the NORD Board of Directors; Sean Nolan, President of Lundbeck Inc.; and guest emcee Patricia Richardson.  NORD honored Lundbeck for bringing a treatment to market for a rare condition affecting very young children known as infantile spasms

Acorda Therapeutics President and CEO Dr. Ron Cohen accepted an award on behalf of his company. The award was presented for the development of a treatment for walking disability related to multiple sclerosis.

NORD Board Members Mary Sprague, of DeBRA of America; Charlene Waldman, of the Paget's Disease Foundation; and MaryBeth Krummenacker, of the Cystinosis Research Network

NORD President and CEO Peter L. Saltonstall; guest emcee Patricia Richardson (of television's Home Improvement and The West Wing); Yann Le Cam, CEO of the Eurorpean Rare Disease Organization (EURORDIS); and Frank Sasinowski, chairman of the NORD Board of Directors.  NORD presented an award to EURORDIS for leadership in encouraging patient solidarity.

Yann Le Cam and Sharon Ashton of the European Rare Disease Organization with representatives of Alexion.